SOURCE: Shikuri Project

Shikuri Project

June 16, 2016 16:51 ET

New York Mother Tackles Sickle Cell Disease in Sub-Saharan Africa; Sunday Is World Sickle Cell Awareness Day: June 19, 2016

NEW YORK, NY--(Marketwired - June 16, 2016) - In the United States, the survival rate for children with sickle cell disease is 94%. In sub-Saharan Africa, it is 10%, a virtual death sentence for the 225,000 children born annually with the disease, many of whom go undiagnosed and live their lives in excruciating pain. It is this that the Shikuri Project Charitable Trust will address.

The Shikuri Project is the labor of love of founder Gail Sealy, whose son Shikuri was born with sickle cell disease when she adopted him at age two from Kenya. As a mother, Sealy has witnessed first-hand this condition which has caused her son such devastation and pain. As a mother in the US, she has seen Shikuri survive and thrive due to access to the best medical care. It is this personal journey and the knowledge that others are suffering that led to her development of this charitable effort, with the hope of raising awareness and funds for children in sub-Saharan Africa.

Sickle cell disease is a life-threatening disease of the red blood cells that can lead to conditions such as stroke, sepsis, pneumonia, kidney failure and chronic pain.

"Diagnosis is so important in helping to minimize the pain of this disease. And anyone who has seen a child with sickle cell suffer in pain understands the heartbreak of this condition," says Sealy. "By raising funds we can provide medication and diagnostic equipment, education for families and communities, and systems for communities to help manage this disease that will make such a difference in the lives of these children."

This Sunday June 19 is World Sickle Cell Awareness Day.

For more information about the Shikuri Project, visit or or email

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