The Trossman-White Family
February 26, 2007 08:01 ET
ABC Nightline Chronicles Toronto Family's Journey
In their quest to find a cure for their young son
Attention: Arts/Entertainment Editor, Assignment Editor, Health/Medical Editor, Lifestyle Editor, News Editor
TORONTO, ONTARIO, MEDIA ADVISIORY--(CCNMatthews - Feb. 26, 2007) - ABC's Nightline will chronicle the four and a half year journey of a Toronto family in their search for a treatment for their son's rare disease. The show is currently scheduled to air on Wednesday, February 28, 2007 at 11:30pm EST.
Jacob Trossman was born with breathing and swallowing difficulties. Other serious problems quickly became evident. Although he is a happy four and a half year old, Jacob cannot sit on his own, walk or talk. He is fed by a tube inserted directly into his stomach.
Jacob's parents, Marcy White and Andrew Trossman, refused to listen to doctors who told them this degenerative disease, Pelizaeus-Merzbacher Disease (PMD), had no treatment or cure. Instead, they decided to take matters into their own hands to find something that could help their son.
Their relentless search for answers led them to a drug, in clinical trials for spinal injuries, that holds promise for Jacob and others who are affected with this rare central nervous system disorder. Marcy and Andrew found a doctor who shared their hope for the drug and through donations raised by their friends and family, funded a study to evaluate the effectiveness of the drug. Early results are dramatic and the family hopes to gain compassionate access to start Jacob on this medication.
The family is trying to raise awareness to garner more support for their efforts.
/For further information: To learn more about Jacob and PMD and to talk to the family, contact:
Marcy White: (416) 420-9392 or email at firstname.lastname@example.org
See the Website: www.curepmd.com and the blog: www.curepmd.blogspot.com
IN: HEALTH, OTHER