Canadian Hemophilia Society

Canadian Hemophilia Society

April 13, 2009 07:00 ET

Canadian Hemophilia Society Enlists Its Community to Spread the Word

MONTREAL, QUEBEC--(Marketwire - April 13, 2009) - On April 17, World Hemophilia Day, thousands of Canadians may be surprised to see what looks like a spreading blood spot in e-mail messages they receive. The animated e-mail banner is part of a campaign by the Canadian Hemophilia Society (CHS) to spread awareness about hemophilia, von Willebrand disease and other inherited bleeding disorders.

It is estimated that 1 in 100 Canadians carry an inherited bleeding disorder gene and 1 in 10 of these, or 35,000 Canadians, have symptoms severe enough to require medical care. Yet many have not been properly diagnosed. The primary objective of the campaign, under the banner Red White & You, is to reach out to Canadians who may be affected by inherited bleeding disorders. The campaign will also educate people about the symptoms and treatment of inherited bleeding disorders.

On Friday, April 17, members of the CHS, its partner organizations and everyone they know will spread the word by including the spreading blood spot banner in all e-mails they send that day. Participants in this unique campaign will include people with bleeding disorders and their families, volunteers in ten provincial chapters across the country, as well as healthcare professionals—doctors, nurses, physiotherapists, social workers—who work in the field of hemophilia. The banner will be available for anyone to download at www.hemophilia.ca.

“The spreading blood spot symbolizes our hope that people across Canada will help us spread the word about inherited bleeding disorders, which affect so many Canadians,” says CHS Executive Director, David Page.

At the same time, the CHS and its ten provincial chapters will organize Red White & You events across the country. During these events informational brochures, bookmarks, bandage dispensers as well as stickers in the shape of bandages will be distributed. All of these items are designed to illustrate the theme, “A bandage is not enough… Help spread the word about inherited bleeding disorders.” These activities will be held in workplaces, schools, malls and other public places across the country. Materials drive people to a web page, stopthebleeding.ca, with links to additional information and resources.

This year marks the 20th anniversary of World Hemophilia Day, an occasion on which hemophilia organizations around the world increase awareness of hemophilia and other bleeding disorders.

About the Canadian Hemophilia Society

Founded in 1953, the Canadian Hemophilia Society (CHS) is a national voluntary health charity. Its mission is to strive to improve the health and quality of life for all people with inherited bleeding disorders, and to find a cure. Its vision is a world free from the pain and suffering of inherited bleeding disorders. For more information please visit: www.hemophilia.ca

Contact Information

  • English Contact:
    Canadian Hemophilia Society (CHS)
    Deborah Franz Currie
    416 972-0641, ext. 22
    dcurrie@hemophilia.ca

    or

    French Contact:
    Canadian Hemophilia Society (CHS)
    Chantal Raymond
    1 800 668-2686 or 514 848-0503, ext. 226
    craymond@hemophilia.ca