SOURCE: Children's HeartLink

Children's HeartLink

December 19, 2013 08:00 ET

Children's HeartLink Develops Pre- and Post-Operative Care Instructions for Caregivers of Children With Congenital Heart Disease

MINNEAPOLIS, MN--(Marketwired - Dec 19, 2013) - Children's HeartLink, a nonprofit organization promoting sustainable cardiac care for children in developing countries, announced today that they have created and released publicly Parent Education/Discharge Instructions (PEDI) to help educate caregivers on pre- and post-operative care for children who have undergone open-heart surgery. 

"PEDI was developed to help parents and caregivers in developing countries provide better care to children who have undergone heart operations by providing them with discharge instructions on medication, wound care, physical activity and diet," said Bistra Zheleva, Children's HeartLink vice president of international programs. "Use of the discharge instructions should lead to better follow-up with patients and improved quality of care provided by hospitals."

The PEDI package is currently available in nine languages with plans for additional languages in the future. The package contains several items, including two booklets for families with higher literacy: one on preparing for an operation and hospital stay and a second with guidance on post-hospital care at home. The low-literacy audience instructions include documents with illustrations and minimal text.

PEDI posters with care instructions are used in the hospital patient wards and an online nursing training module is provided for educating nurses on how to present the information to parents and caregivers. Studies indicate that delivery of post-operative patient education through individualized content, use of combined media for delivery, provision of education on a one-on-one basis, and in multiple sessions are associated with improvement health outcomes.(1) WiRED International, a nonprofit organization that provides vital medical information and education to underserved regions around the world, created the nursing training module. WiRED International hosts the training course and booklets on their site for Children's HeartLink.

PEDI has been implemented at six of Children's HeartLink partner hospitals around the world, with plans to roll it out at the remaining four partner hospitals in the coming months and years.

About Children's HeartLink
Founded in 1969, Children's HeartLink is a nonprofit organization partnering with health care centers in underserved regions of the world to promote sustainable cardiac care for children with congenital or acquired heart disease. Congenital heart disease is the world's most common major birth defect, affecting one in every 120 children. Nearly 90 percent of those newborns are in areas of the world where appropriate medical care is inadequate or unavailable. Children's HeartLink currently supports partner hospitals and programs in Brazil, China, India, Malaysia, Ukraine and Vietnam. For more information on Children's HeartLink, please visit

(1) Fredericks, S., Guruge, S., Sidani, S., Wan, T. (2010). Postoperative Patient Education: A Systematic Review. Clinical Nursing Research, 19, 144-164. doi:10.1177/1054773810365994

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