SOURCE: CureDuchenne

CureDuchenne

October 14, 2009 11:00 ET

CureDuchenne Launches CureDuchenne Adventures

Nonprofit Introduces Innovative New Fundraising Model That Pairs Thrill-Seeking With Life-Saving Research

CORONA DEL MAR, CA--(Marketwire - October 14, 2009) - CureDuchenne, an Orange County based nonprofit dedicated to finding a cure for Duchenne Muscular Dystrophy (DMD), today announced an innovative new program called CureDuchenne Adventures. CureDuchenne Adventures will engage thrill-seekers, adventurers, and ordinary people in activities ranging from mountaineering to sailing and other extraordinary adventures, all while raising life-saving funds and building awareness for DMD research.

Following the success and popularity of the 2009 Climb to Cure Duchenne -- where a group of twelve parents, scientists, rock musicians and other advocates set out to summit Mt. Rainier in Seattle, Wash. -- CureDuchenne Adventures will announce unique activities for adventurers of all ages, skill levels and interests. Aimed at showcasing ordinary people accomplishing extraordinary feats, CureDuchenne Adventures takes extreme travel to new philanthropic heights.

"As parents of a child with DMD, we would move mountains if it meant a cure for Duchenne and saving our boys," said Debra Miller, CureDuchenne co-founder. "Instead, we're going to climb mountains, race sailboats and create fun and innovative adventures in an effort to raise enough money and awareness to stamp out DMD for not only our boys but for generations to come."

Founded in 2003 by Miller and her husband Paul following the devastating diagnosis of their son at age five, CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at finding a cure for DMD. As the leading genetic killer of young boys, this devastating disease affects more than 1 in 3,500 boys worldwide and is the most common and lethal form of Muscular Dystrophy.

Boys with DMD are usually diagnosed by the age of five, in a wheelchair by age 12, and may be completely paralyzed by their late teens. Historically, most patients with DMD do not live to see adulthood. Duchenne can occur in any family, from any race and from any background.

CureDuchenne is challenging Americans to dedicate their adventure vacations to saving lives by participating in a CureDuchenne Adventure and raising funds for research projects happening around the world. Focused on getting the science out of the lab and into human trials, CureDuchenne has already funded some of the leading research for DMD patients. For example, CureDuchenne funded Netherlands based biotechnology company Prosensa during the initial phase of their ground-breaking exon skipping research. This week, Prosensa announced their potential $680 million collaboration with pharmaceutical giant GlaxoSmithKline for the development and commercialization of RNA based therapeutics for Duchenne Muscular Dystrophy.

The 2010 CureDuchenne Adventures line up will include a second mountain climb, this time up North America's tallest peak, Mt. McKinley; complete with simultaneous nationwide participation on peaks from coast to coast. Additional adventures will be announced throughout 2010 including the CureDuchenne Regattas which will take place around the country.

For more information or to sign up for CureDuchenne Adventures updates, please visit www.cureduchenneadventures.org or follow CureDuchenne Adventures on Twitter: @CDadventures.

About CureDuchenne

CureDuchenne is a nonprofit organization that raises awareness and funds specifically aimed at taking on Duchenne Muscular Dystrophy (DMD). By working closely with the world's leading DMD scientists CureDuchenne works to determine the most viable research projects that will accelerate the clinical trial process and bring potential life-saving drugs to help this generation of young boys living with the deadly disease.

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