Quebec Cystic Fibrosis Association

April 20, 2007 14:57 ET

Cystic Fibrosis Awareness Raising Campaign: Johanne Blouin Takes Over From Jean-Pierre Ferland

MONTREAL, QUEBEC--(CCNMatthews - April 20, 2007) - Johanne Blouin has enthusiastically agreed to take over from Jean-Pierre Ferland in promoting the cause of persons with cystic fibrosis. In doing so, she is continuing the tradition that, in May each year, the Quebec Cystic Fibrosis Association is supported by public personalities in raising awareness of this terrible disease and encouraging the public to come to the aid of persons with CF.

Interesting coincidences

Spokesperson for the JazzFest des Jeunes du Quebec in 2006 and 2007, Johanne Blouin found that Denis Mouton, one of her past professors, was a member of the Organization Committee. With children who suffer from cystic fibrosis, Denis Mouton had no difficulty in explaining the cause to Johanne.

Shortly after, she received a call from Jean-Pierre Ferland's wife, whom she already knew, who suggested she take over from Jean-Pierre since he wished to gradually withdraw from public life.

"There were just too many coincidences in too short a time. First the JassFest proposal which supports the cystic fibrosis cause, then, Jean-Pierre, who acted as provincial spokesperson during Cystic Fibrosis Month... I said to myself that it was obviously meant to be," Johanne explained.

A prominent campaign

Starting on April 23, the Quebec Cystic Fibrosis Association will be significantly increasing its visibility in public spaces, not only in Montreal, but throughout Quebec.

In the Montreal metro, a triplet of large posters will be displayed in close to 70 stations of the underground network. Fleets of buses have also been selected to carry the QCFA message in Gatineau, Quebec City, the Saguenay, Shawinigan, Sherbrooke and Trois-Rivieres, involving close to 1000 vehicles.

A media campaign will be launched in newspapers in the Charlevoix, Lac Saint-Jean, Lower Saint Laurence/Gaspe and North Shore areas.

The QCFA will also be benefiting from the generosity of print and electronic media which will be circulating its public interest messages free of charge.

Regional spokespersons

In the 11 regions of the QCFA chapters, persons with cystic fibrosis or members of their families will be working in the field to share their personal experience of the disease with the general public.

These spokespersons will be presented to print and electronic media throughout the month of May in regional press releases.

Events that should not be missed

Among the events to be held in May, the grand annual ball is certainly one of the most popular. Under Honourable Presidents, Daniel Labrecque, CEO of Rothschild Canada, and Fred Green, CEO of Canadian Pacific Railways, each year, this prestigious event attracts distinguished guests from the business world.

With the theme of the Orient Express, the guests will be welcomed on May 8 by Master of Ceremonies, Stephane Langdeau, in Windsor Station's Salles des pas perdus for a festive evening marked by the celebrated auction.

In addition, the public will be invited to demonstrate solidarity with persons who have cystic fibrosis and their families during the Great Strides walk to be held on May 27 in Laval, Saguenay, Rimouski and Quebec City. The objective for 2007 is $92,000; persons interested can register on line at

A record year

During 2006-2007, the Quebec Cystic Fibrosis Association recorded net revenues of $1,847,593 which will be invested in medical research and maintaining care offered to patients in specialized clinics. This represents a 22% increase over the preceding year and is the organization's best results in its 26 years of activity.

According to Claude Bourque, Executive Director of the QCFA, this exceptional performance is due to a number of factors. "Over the past few years, we have developed our expertise, particularly in organizing large scale corporate events, as well as initiating a procedure to diversify our revenues, factors which are evidently bearing fruit," he explained.

Contrary to popular belief, it is not the large corporate campaigns which generate the most revenues, but all the public fundraising activities held each year throughout Quebec.

At this time, we have close to 150 of these activities ranging from the tourtiere dinner evening to the Great Strides walk, not to mention the annual benefit show. These events owe their success to the volunteer work of many persons devoted to the cause as well as the public's generosity.

Cystic Fibrosis: facts and figures

Cystic fibrosis is the most common fatal hereditary diseases among young Canadians. It mainly affects the lungs and digestive system. It is a degenerative disease with no possibility for remission or cure.

Only half of the persons with CF will live past the age of 37 years and they must fight for their lives every day. In Canada, the proportion of carriers of the defective gene responsible for cystic fibrosis is 1 in 26. In Quebec, it is 1 in 20.

To find out more, view our information DVD at


Since 1981, the Quebec Cystic Fibrosis Association, in partnership with the Canadian Cystic Fibrosis Foundation (CCFF), has been supporting persons with the disease and their families by raising funds to finance advanced medical research programs and specialized quality care offered in cystic fibrosis clinics.

In Quebec, we have 11 specialized cystic fibrosis clinics and several research scientists of international eminence.

To find out more, go to or www.fcfk

Contact Information

  • Quebec Cystic Fibrosis Association
    Manon Limoges
    Communications Manager
    1-800-363-7711 OR 514-877-6161, ext. 224