SOURCE: Cystinosis Research Foundation

Cystinosis Research Foundation

November 05, 2013 12:00 ET

Cystinosis Benefit Golf Tournament Raises $360,000

IRVINE, CA--(Marketwired - Nov 5, 2013) - The sixth annual Natalie's Wish Fore a Cure Golf Tournament raised a record $360,000 to cure cystinosis through generous donations and sponsorships by 190 companies and individuals. Cystinosis is a rare, metabolic and fatal disease that afflicts about 500 children and young adults in the United States and 2,000 worldwide.

"It's the heartfelt and generous support of our friends that has enabled the CRF to make major advancements in treating cystinosis, including funding research that produced an approved time-release drug this year. CRF-funded researchers also are making breakthroughs toward a cure. We are so honored to be part of the research progress," said Vince Ciavarella, the CRF's tournament chairman.

Leading the event's list of supporters was Oltmans Construction, returning for a second year as Presenting Sponsor.

Silver Sponsors were: Howard Roofing Company Inc., SARES•REGIS Group and TLG Paving Company.

Bronze Sponsors were: Allen Matkins, Bank of America Merrill Lynch, Bank of the West, Ben's Asphalt Inc., Bristol Group, Tres Reid, Brad Bierbaum, Brian DeRevere and Ryan Peterson of CBRE, Certified Door and Dock Equipment, Contract Carpet Corp., Eagle Construction, Fashion Furniture Rental, Commercial Roof Management, First American Title, Quiksilver, Gorman Roofing Services, Independence Bank, Joseph Holt Plastering, FullScale Demolition Inc., Joe McKay and Mike Wolfe of Lee & Associates, Norm Wilson & Sons General Contractors, RGA Office of Architectural Design, US Energy Recovery, Moran & Company, Silverline Construction Inc., Sullivan Curtis Monroe Insurance Services, TCA Architects, Villa Park Landscape, Sanders &Wohrman and Tucker Electric Corp.

Underwriters were: Link, Murrell & Company, LLP, Steve Bellitti and Tom Taylor of Colliers International, Alabout Fire Inc. SP Inc, Fletcher Jones Motorcars, Traditional Jewelers, MultiHousing Pro, Orange County Business Journal, Cell-Crete, Interstate, MAC Mechanical Contractors, Silverline Construction Inc, Val Achtemeier, Darla Longo, Barbara Emmons and John Schumacher of CBRE, The Dot Corp., DeRevere & Associates Architecture, Chuck Belden and Phil Lombardo of Cushman & Wakefield, Noelle Design/ Print/Marketing, Integrated Services, Berkeley Point, RealPage, Champion Fire Systems Inc., Guard Top, Masterline Plumbing, Sherwin Williams, A La Carte Catering Inc., X-Act Finish & Trim Inc., FullScale Demolition, Margie Malloy, Dean Zander & Vince Norris of Hendricks & Berkadia, Invictus Construction Specialists, ALC Construction LLC, NASA Services, ChapmanGlucksman, Walker & Dunlop, Brian Okrent and Michael Yoo of J.P. Morgan Asset Management, Partner Engineering and Science Inc.

The event was held at the Santa Ana Country Club Oct. 28. Organizers sold out the tournament three-months early. Proceeds to the CRF are committed entirely for research aimed at finding a cure and improved treatments for the disease.

Cystinosis is a metabolic disease that slowly destroys every organ in the body, including the liver, kidneys, eyes, muscles, thyroid and brain. There is a medicine that prolongs children's lives, but there is no cure.

The CRF of Irvine, Calif., is the leading private source for bench and clinical investigations of cystinosis worldwide. All the foundation's administrative costs are privately underwritten.

The foundation was formed in 2003 by Nancy and Geoffrey Stack, a managing director of the SARES•REGIS Group, an Irvine real estate company. Their daughter Natalie, 22, was diagnosed with cystinosis at infancy.

The CRF has raised more than $22 million and funded 109 cystinosis research studies and fellowships in 11 countries and is the largest fund provider of cystinosis research.

For more information about the event and the Cystinosis Research Foundation, go to www.cystinosisresearch.org.

Contact Information

  • Contact:
    Zoe Solsby
    949-223-7610
    Art Barrett
    714-309-3700