The Economic Club of Canada

The Economic Club of Canada

September 24, 2015 06:30 ET

Experts Gather to Discuss Rare Disease Strategy for Canadians

Presented by CORD and The Economic Club of Canada

TORONTO, ONTARIO--(Marketwired - Sept. 24, 2015) - The Canadian Organization for Rare Disorders (CORD), through a series of Economic Club of Canada luncheons, will be discussing the urgent need for a Canadian Strategy for Rare Diseases.

In Canada, disability and death due to cancer, cardiovascular disease, and diabetes have dropped by 50% and more over the past 20 to 50 years due in large part to world-class national strategies. At the same time, Canadians with rare diseases still struggle to access timely and appropriate care, resulting in unnecessary delays in testing, wrong diagnoses, children with physical and mental developmental challenges, and premature death. Canada lags behind more than 35 other countries that have already developed national plans for rare diseases. We call upon all Canadians to join us calling for the implementation of Canada's Rare Disease Strategy to provide the same hope and treatment as available to Canadians with common conditions and rare disease families around the world.

WHO: Panelists:
Durhane Wong-Rieger, President & CEO, Canadian Organization for Rare Disorders
Dr. Daniel Drucker, Senior Investigator, Lunenfeld-Tanenbaum Research Institute, Mount Sinai Hospital
Clarissa Desjardins, Founder and CEO, Clementia Pharmaceuticals
Mr. Fred Horne, Former Minister of Health, Alberta
WHAT: Panel discussion: "A Rare Disease Strategy for All Canadians"
WHEN: Thursday, September 24, 2015
11:30 a.m. Guest/media registration begins
12:15 p.m. Panel discussion
1:30 p.m. Event concludes
WHERE: Marriott Eaton Centre
525 Bay Street
Toronto, ON M5G 2L2
Toronto / Ballroom

Contact Information

  • To confirm attendance or for more information
    about the event: The Economic Club of Canada
    Kara Merpaw
    O: 416-306-0899
    M: 416-333-8798