SOURCE: Inspire


February 28, 2013 07:00 ET

Genetic Alliance and Inspire Partner on Rare and Genetic Disease Support Community

PRINCETON, NJ--(Marketwire - Feb 28, 2013) -  Inspire, the patient engagement company, announced today that Genetic Alliance will partner with Inspire to create the Inspire/Genetic Alliance Rare Disease and Genetic Conditions Support Community (

Genetic Alliance is the world's leading nonprofit health advocacy organization committed to transforming health through genetics. It will work with Inspire to expand the focus of the peer-to-peer community to include genetic conditions.

"We originally created this community with NORD and its founder, Abbey Meyers," said Brian Loew, co-founder and CEO of Inspire. "We thank Abbey and have tremendous appreciation for her vision. Today, we extend this community to include all genetic diseases, and in doing so we cannot imagine a better partner, more dedicated to this cause, than Genetic Alliance."

This partnership enables Inspire and Genetic Alliance to expand the focus and depth of the community while enhancing current members' ability to exchange information and support with others affected by rare diseases and genetic conditions. Genetic Alliance's mission includes empowerment, education, and dialogue, and this peer-to-peer community is built on those principles, Loew noted.

"We are very excited to create this dynamic partnership with Inspire," said Sharon Terry, Genetic Alliance president and CEO. "This will give individuals with genetic conditions a variety of ways to interact with one another. Over our 26 years, we have created dozens of tools for individuals affected by rare and genetic diseases, and look forward to sharing these resources with this support community."

The Inspire/Genetic Alliance Rare Disease and Genetic Conditions Support Community now has over 13,000 members from more than 100 countries. Member profiles include over 4,000 distinct medical conditions. The group is highly engaged -- members have written over 41,000 posts in the past two years alone. Across all of Inspire's support communities there are well over 40,000 members affected by a rare disease.

About Genetic Alliance
Genetic Alliance improves health through the authentic engagement of individuals, families, and communities. Genetic Alliance is the world's leading nonprofit health advocacy organization committed to transforming health through genetics and works to connect consumers to the smart services they need to make informed decisions about their health and healthcare.

Genetic Alliance's network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. For more information about Genetic Alliance, visit

About Inspire
Princeton, NJ-based Inspire is the patient engagement company. Inspire creates safe, moderated online communities, organized by medical condition, and helps life science organizations connect with these highly engaged populations. Inspire builds and manages these communities in partnership with more than 80 national patient advocacy and support organizations.

Inspire communities for people affected by rare disorders include: ALS Advocacy Support Community, Ehlers-Danlos National Foundation Support Community, Encephalitis Global Support Community, Fibromuscular Dysplasia Society of America Support Community, National Fabry Disease Association Support Community, Neurofibromatosis Network Support Community, Scleroderma Foundation Support Community, Tuberous Sclerosis Alliance Support Community, Foundation for Sarcoidosis Research Stop Sarcoidosis Support Community, and several others. For more information, visit

Contact Information

  • Inspire Media Relations
    John Novack
    +1 800 945 0381
    Email Contact