SOURCE: HealthDataRights.org

HealthDataRights.org

June 22, 2009 21:32 ET

HealthDataRights.org Calls for People's Right to Have and Share Health Data

Thought-Leaders Unite to Release Declaration of Health Data Rights

BOSTON, MA--(Marketwire - June 22, 2009) - Today, thought leaders across healthcare are collaborating to launch www.HealthDataRights.org and unveil a shared statement to ensure patients' rights to access and share their own health information.

The site, designed to give people a voice in preserving their right to take responsibility for their own information and care, features a Declaration of Health Data Rights that reads as follows:

In an era when technology allows personal health information to be more easily stored, updated, accessed and exchanged, the following rights should be self-evident and inalienable. We the people:

--  Have the right to our own health data
--  Have the right to know the source of each health data element
--  Have the right to take possession of a complete copy of our individual
    health data, without delay, at minimal or no cost; If data exist in
    computable form, they must be made available in that form
--  Have the right to share our health data with others as we see fit
    

These principles express basic human rights as well as essential elements of healthcare that are participatory, appropriate and in the interests of each patient. No law or policy should abridge these rights.

With broad support across the entire health industry, the Declaration of Health Data Rights and perspectives on what it means will be written about today across the blogosphere, including:

http://adambosworth.net
http://blog.patientslikeme.com
http://www.drgreene.com
http://www.thehealthcareblog.com
http://blogs.msdn.com/familyhealthguy
http://e-patients.net
http://diabetesmine.com
http://2ohreally.com
http://www.huffingtonpost.com
http://blogs.technet.com/neupertonhealth
http://www.kibbeandklepper.blogspot.com
http://www.healthcommentary.org
http://www.wellsphere.com
http://www.IxCenterBlog.org

Additionally, a list of organizational and individual supporters is also available at www.HealthDataRights.org. To date, the list of corporate endorsements includes:

23andMe
Association of Cancer Online Resources (ACOR)
Center for Democracy and Technology Dossia
DrGreene.com
FasterCures
Google Health
Keas
Microsoft
Navigenics
O'Reilly Media
Partners Healthcare
PatientsLikeMe
TEDMED
WebMD

About HealthDataRights.org

Launched in June 2009, HealthDataRights.org is the home to our Declaration of Health Data Rights, an articulation of people's inalienable right to have and share their own health data. To endorse your right to health data, go to www.healthdatarights.org.

Contact Information

Webosphere

Keyword Cloud

View Website