SOURCE: LAM Foundation

LAM Foundation

June 01, 2016 06:00 ET

June 1st Is World Wide LAM Awareness Day to Raise Awareness of a Rare Disease That Affects Women

CINCINNATI, OH--(Marketwired - June 01, 2016) - About 1,400 American women and an estimated 3,500 globally have been diagnosed with LAM or Lymphangioleiomyomatosis, a progressive and deadly rare lung disease which affects women during their child bearing years. One in 10 Americans is affected by a rare disease, and there are 7,000 rare diseases with only 500 having a known treatment.

Today on June 1st, women with LAM, scientists and clinicians around the world, who are researching the disease along with The LAM Foundation, will pay tribute to these efforts on World Wide LAM Awareness Day.

The LAM Foundation, based in Cincinnati, Ohio, is working on a national basis to enhance the care of women with LAM as well as fostering collaboration among scientists and clinicians to inspire innovative research efforts.

Over the past 20 years, The LAM Foundation has raised more than $19 million and directed the majority to research, which has been leveraged to $40 million in funding from other sources including the National Institutes of Health.

These funds have contributed to three major scientific breakthroughs, including the identification of a LAM gene, a powerful diagnostic biomarker, and the first-ever treatment for LAM.

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