SOURCE: Lupus Foundation of America

Lupus Foundation of America

June 10, 2016 10:47 ET

Lupus Foundation of America Applauds U.S. Senate for Supporting Lupus Research Through 2017 Appropriations Act

WASHINGTON, DC--(Marketwired - June 10, 2016) - The Lupus Foundation of America thanks the U.S. Senate Appropriations Committee for voting to pass the Fiscal Year 2017 appropriations bill, which includes critical research and education funding for lupus. The bill now moves to the full Senate for consideration.

The bill would provide $6 million for the National Lupus Patient Registry Program at the Centers for Disease Control and Prevention, continued funding for the Lupus Initiative at the Office of Minority Health within Health and Human Services and $34 billion for the National Institutes of Health (NIH) for medical research, including research for lupus.

"We applaud the Senate for their support of critical funding for lupus research to accelerate the discovery and development of new therapies, and ultimately, cures," said Sandra C. Raymond, Lupus Foundation of America President and CEO. "We have worked diligently with the Congress to ensure that these vital programs continue and expand upon the important work that is being done to improve and save the lives of people impacted by this devastating disease.

"In 2003 at the urging of the Lupus Foundation of America and its national network of chapters and activists, Congress established the National Lupus Patient Registry (NLPR), the first comprehensive research study to assess the prevalence and incidence of lupus in the United States. Thanks to ongoing Congressional support, NLPR is helping us better understand and measure the burden of illness, the social and economic impact of the disease, and to stimulate additional private investment by industry for drug development.

"Additionally through our advocacy efforts, we urged Congress to continue to support the Office of Minority Health National Health Education Lupus Program and efforts to develop a clinical trial education and implementation plan for lupus.

"On an ongoing basis, we work to ensure that the NIH has sufficient funding to fulfill their critical mission of uncovering new knowledge that will improve public health, as well as reduce the burdens of illness and disability."

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About Lupus
Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It strikes without warning, affects each person differently, and has no known causes or cure. Lupus symptoms can be severe and highly unpredictable and can damage any organ or tissue, from the skin or joints to the heart or kidneys. It is difficult to diagnose, hard to live with and a challenge to treat.

About the Lupus Foundation of America
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education and advocacy, we lead the fight to improve the quality of life for all people affected by lupus. Learn more about the Foundation at For the latest news and updates, follow us on Twitter and Facebook.

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