National ME/FM Action Network

National ME/FM Action Network

August 17, 2011 09:00 ET

National ME/FM Action Network: News Release

OTTAWA, ONTARIO--(Marketwire - Aug. 17, 2011) - On September 22 to 25th., 2011, Canada will host the 10th. Biennial IACFS/ME International Clinical and Research Conference on Chronic Fatigue and Fibromyalgia; Translating Evidence into Practice. Hosting this prestigious event is the National ME/FM Action Network (Chronic Fatigue and Fibromyalgia) Ottawa, Canada. This four-day conference will bring together specialist physicians, scientific researchers, clinicians, advocates, and other allied health care practitioners from around the world as well as from Canada. It is the first time a medical conference of this magnitude of these debilitating illnesses has been held in Canada. Encompassed is a one-day patient conference on September 22nd, 2011. This conference will be dedicated to linking research and clinical evidence into practical application, which has been severely lacking to date. A presentation will also be on the New International Consensus Criteria for Chronic Fatigue Syndrome.

The National ME/FM Action Network (Canada) was founded in 1993 for Myalgia Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to help those with these illnesses and to encourage research and awareness. Although we are a Canadian organization, our outreach is worldwide and we are in touch with the medical communities and support networks around the world.

The National ME/FM Action Network is responsible for putting together international meetings of CFS professionals that in 2003 developed the clinical Consensus Documents, which have become known as The Canadian Definitions for Chronic Fatigue and Fibromyalgia worldwide. These Consensus Documents are available to medical professionals on the web-site:, and outline symptoms, diagnostic and treatment criteria. For this accomplishment, Lydia Neilson, CEO, was awarded the Governor General of Canada's Meritorious Service Decoration in May 2005 in recognition for a deed or activity performed in an outstandingly professional manner or according to an uncommonly high standard that brings considerable benefit or great honour to Canada.

In 2005, the Canadian Community Health Survey, conducted by Statistics Canada, reported on 23 chronic health conditions. 333,816 Canadians were reported diagnosed with CFS and 389,782 with FM. 18% of the people with CFS were unable to work, and this number was only challenged by stroke victims at 20%. FM followed with 14%. CFS rated highest at unmet health care needs at 30% and FM 26%. As the numbers of diagnosis continues to grow, clearly, the needs of CFS and FM patients are not being met, and the resulting costs in productivity losses and health care costs are great.

The IACFS/ME consists of over 500 scientists, clinicians and educators dedicated to the study, care and treatment of individuals with CFS and FM. Both organizations are committed to ensuring the recognition and treatment of these debilitating illnesses by promoting high quality research. We have been working closely with the IACFS/ME President, Dr. Fred Friedberg to ensure that the September 2011 conference will be of the highest quality professional and scientific gathering.

For more information and to participate or sponsor the IACFS/ME conference on CFS and FM please see the contact information below.

Contact Information