SOURCE: National Tay-Sachs & Allied Diseases

October 30, 2013 06:00 ET

National Tay-Sachs & Allied Diseases to Honor Dr. Philip Reilly, Champion of Treatments for Rare Genetic Diseases

Annual Benefit Scheduled for November 7

BOSTON, MA--(Marketwired - Oct 30, 2013) - National Tay-Sachs & Allied Diseases Association (NTSAD), the nation's oldest patient advocacy organization, announced that Philip Reilly, M.D., J.D. will be the honoree at its Imagine & Believe Benefit to fund rare disease research and support families affected by Tay-Sachs, Canavan and related rare genetic diseases. 

The event, to be held Thursday November 7, 2013 from 6:00 to 9:30 pm at the Royal Sonesta Hotel in Cambridge, will also feature special guest Emily Rapp, a New York Times best-selling author who lost her son Ronan to Tay-Sachs. 

Tickets and more information are available at www.ntsad.org or by calling (617) 277-4463.

Event honoree Dr. Reilly is a venture partner at Third Rock Ventures, where he nurtures companies dedicated to breakthrough treatments for genetic diseases. A founding fellow of the American College of Medical Genetics and former two-time President of the American Society of Law, Medicine and Ethics, he speaks frequently about genetics.

"Phil Reilly has dedicated his career to work that personifies NTSAD's mission. His long-standing interest in genetic testing and in developing new therapies for genetic diseases, coupled with a compassionate and personal approach to those affected by these diseases, mirrors the focus of our organization," says NTSAD Executive Director Susan Kahn. 

NTSAD funds promising research and supports more than 500 affected families and individuals worldwide. The organization's educational programs raise awareness of how to prevent Tay-Sachs, Canavan, Sandhoff, GM-1 and related neurodegenerative enzyme deficiency diseases, which are frequently life-limiting. NTSAD gives help and hope to thousands of individuals and families from many backgrounds and ethnicities affected by these lysosomal storage diseases and leukodystrophies.

"Dr. Reilly's many accomplishments in the genetics community continue to benefit industry, patients and their families," says NTSAD President Shari Ungerleider. "As a patient and disease advocacy group with a 56 year history of support, science, and education in genetics-based diseases, we are delighted that he is our honoree this year." 

Note to editors: Photos available upon request. Local families affected by Tay-Sachs and related rare genetic diseases are available for interviews.

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