October 10, 2011 11:30 ET

RemedyMD and the Children's Rare Disease Network to Announce Winner of $50,000 Rare Disease Registry During Live Demonstration via Webinar, October 12th

Rare Disease Organizations Anxiously Await Results of Summer-Long Online Video Contest Giving Away Leading Life Science Research Platform

DANA POINT, CA and SALT LAKE CITY, UT--(Marketwire - Oct 10, 2011) - Earlier this year the Children's Rare Disease Network received a donation from RemedyMD® ( of its RegistryOnDemand™ product specifically created for rare disease research organizations, who in turn announced a plan to give this research registry tool away to one lucky winner via an online video contest. That contest ended last Friday, and the winner will be announced via live webinar this Wednesday, October 12th at noon Eastern.

Attendees can hear the winner and watch an educational demonstration of the unique rare disease research technology for free by registering at

The RemedyMD medical research software allows for the collection of disease data from any available sources including self-reported patient longitudinal data, and features powerful query and analysis tools to accelerate breakthroughs in treatments or cures. Because of its unique technology, RemedyMD also just announced its software will be implemented at 10 NCI (National Cancer Institute) locations as part of SAIC-Frederick's Advanced Technology Program.

RemedyMD will work with researchers at the winning disease organization to configure its Mosaic™ registry software to suit their needs -- including aggregating and harmonizing available data and showing them how to easily collect new data, so the integrated powerful querying tools can recognize new patterns to develop new treatments or cures.

The unique configurability of the registry is what allows all rare disease researchers to collect exactly what they need -- while leveraging nearly a decade of software development they could not have spent millions to develop on their own. RemedyMD offers rare disease researchers special pricing due to their inherent lack of funding.

Contest video entries can be viewed at including those for Nephrotic Syndrome and FSGS, Marshall-Smith Syndrome, Pseudotumor Cerebri, Eosinophil Associated Diseases, Congenital Myasthenic Syndrome, Disorders of Sex Development, Pachyonychia Congenita, and Prader-Willi Syndrome.

Register for the Oct. 12th free webinar by visiting

About RemedyMD
RemedyMD's medical registry software leverages health care information technology to advance rare disease and other types of research. RemedyMD helps researchers aggregate and harmonize data from widely disparate sources and then identify patterns that result in accelerated discoveries. Our tools help collect, host, manage, and query data regardless of source; conduct experiments; manage studies and biospecimen; and help researchers build their own registries. For more information visit:

About The Children's Rare Disease Network
The Children's Rare Disease Network has built an online community where children with rare diseases, their families, and the organizations that support them will have the opportunity to communicate, collaborate, become educated and tap existing resources, helping them with their daily challenges. Children and their families need information, resources and a coherent voice to speak to issues common to children who suffer from a rare disease. The Network will seek to work collaboratively with other organizations and raise the profile of the problems faced by people with rare diseases so that more funding can be directed into this area of great need. For more information visit

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