SOURCE: Wescom

June 01, 2006 11:02 ET

The Scleroderma Foundation and Wescom Credit Union Join the Los Angeles Board of Supervisors to Declare June Scleroderma Awareness Month

LOS ANGELES, CA -- (MARKET WIRE) -- June 1, 2006 -- Los Angeles County Board of Supervisors formally declare the month of June Scleroderma Awareness Month at a Proclamation Ceremony on June 7th at 9:00 at the Kenneth Hahn Hall of Administration and recognize Wescom Credit Union for its sponsorship of the 4th Annual Scleroderma Walkathon.

"Scleroderma can be a very difficult disease to live with," says Brian R. Adams, Executive Director, Scleroderma Foundation. "It can rob people of mobility and the ability to do simple tasks. In certain cases it is fatal. But even in its mildest form it affects one's quality of life. Thanks to the work of the Scleroderma Foundation -- and the research that is being funded -- we believe we're closer than ever to finding a cure."

"We commend the Los Angeles Board of Supervisors for recognizing this serious disease and proclaiming June Scleroderma Awareness Month," said Yesceni Ramirez, vice president of community relations of Wescom Credit Union. "Scleroderma is taking the lives of too many Americans and we need help to fund cutting-edge science that will make a difference."

Scleroderma is a chronic, often progressive, autoimmune disease in which the body's immune system attacks its own body. There are an estimated 300,000 patients living in the United States alone. More than 80% of scleroderma patients are women, but the disease also strikes men and children across all ages and ethnic boundaries.

Scleroderma, which literally means "hard skin," can cause a thickening and tightening of the skin. In some cases it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract.

The National Scleroderma Foundation was formed in 1998, by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation. It is based in greater Boston.

The goal of the Foundation is to find a cure for scleroderma.

In conjunction with Scleroderma Awareness Month, the Southern California Chapter of the National Scleroderma Foundation will have a Stepping Out to Cure Scleroderma walk at 10:00 AM, June 11th at Huntington Beach's Central Park. Proceeds will fund Scleroderma education and research. For information call (310) 477-8225 or visit www.scleroderma.org/chapter/southerncal.

For information about the National Scleroderma Foundation visit www.scleroderma.org

Contact Information

  • CONTACT:
    Brian Adams
    Executive Director
    Scleroderma Foundation/Southern California Chapter
    (310) 447-8225
    www.scleroderma.org