SOURCE: Sjogren's Syndrome Foundation

Sjogren's Syndrome Foundation

July 22, 2016 10:40 ET

Sjogren's Syndrome Foundation: Rheumatology Clinical Practice Guidelines Published

BETHESDA, MD--(Marketwired - Jul 22, 2016) - As we prepare to celebrate World Sjogren's Day on July 23rd, the SSF is excited to announce the publication of the first U.S. Rheumatology Clinical Practice Guidelines for Sjogren's. Published in Arthritis Care and Research, these rheumatology guidelines were designed to improve quality and consistency of care for Sjogren's patients by offering clinicians recommendations for disease management. Among the recommendations, the guidelines address issues such as the use of biologic agents, management of fatigue, and inflammatory musculoskeletal pain in systemic Sjogren's.

Steven E. Carsons, MD, and Ann Parke, MD, co-chaired the rheumatology clinical practice guideline committee that led the effort to develop clinical questions about the management of Sjogren's. After extensive literature review and data extraction, draft recommendations were considered by a consensus expert panel consisting of academic and community practice clinicians, registered nurses and patients. The expert panel reached consensus on nineteen recommendations.

Steven Taylor, CEO of the SSF, says: "Over 100 Sjogren's experts volunteered their time and efforts to make our Clinical Practice Guidelines initiative a reality. These first ever, standard of care guidelines for systemic Sjogren's in the U.S. will fill a significant clinical void. But beyond that, the guidelines will inform health care coverage policy, lead to needed educational programs, and highlight opportunities for future research."

With the publication of the Rheumatology guidelines, the SSF has now published Oral, Ocular, and Rheumatology Clinical Practice Guidelines for Sjogren's under the leadership of Frederick Vivino, MD, FACR, Chief of Rheumatology, Presbyterian Medical Center, University of Pennsylvania.

To find out more about the development and dissemination of Clinical Practice Guidelines for Sjogren's, contact the SSF office at 1-800-475-6473 or visit their website, www.sjogrens.org.

Sjogren's ("SHOW-grins") is the second most prevalent rheumatic autoimmune disorder, striking as many as 4 million Americans with an estimated 2 million cases currently undiagnosed. Early diagnosis and treatment are important for preventing Sjogren's complications. Unfortunately, reaching a diagnosis is often difficult and takes an average of 3.5 years from the onset of symptoms.

Sjogren's is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies and lymphomas. 

Contact Information

  • Contact:
    Sarah Martin
    Sjogren's Syndrome Foundation
    Direct Line: 301-530-4420 Ext. 209
    Fax: 301-530-4415
    Email: Email Contact
    Website: www.sjogrens.org