SOURCE: Sjogren's Syndrome Foundation

Sjogren's Syndrome Foundation

September 01, 2011 15:27 ET

Sjogren's Syndrome Foundation Supports Venus Williams

BETHESDA, MD--(Marketwire - Sep 1, 2011) - The Sjögren's Syndrome Foundation (SSF) was saddened to hear about Venus Williams' diagnosis of Sjögren's syndrome and supports her courageous decision to step forward and share her diagnosis.

Steven Taylor, CEO of the Sjögren's Syndrome Foundation, states, "On behalf of the 4 million Americans with Sjögren's, we applaud Venus for publicly stepping forward and shedding light on this serious autoimmune disease. Her courage gives hope to many who live silently with Sjögren's because of the lack of awareness around this disease."

Although not always life-threatening, Sjögren's can cause debilitating and life-long complications and have a profound effect on one's quality of life. At the same time, many Sjögren's patients fortunately live healthy and productive lives free of major complications.

Sjögren's syndrome is the second most common autoimmune rheumatic disease and 3x more common than better known related diseases such as Lupus and Multiple Sclerosis. The disease affects the moisture-producing glands which can cause dry mouth and dry eye. In addition, fatigue, muscle pain and joint pain are prominent symptoms while serious manifestations can occur with life-threatening lung involvement, central nervous system complications and cognitive functioning.

As Venus stated, she "is thankful to finally have a diagnosis," and the SSF is glad that she now has peace in knowing what was causing her symptoms. Unfortunately, many Sjögren's patients face the same struggle with trying to get a diagnosis that, on average, takes 6.5 years. The Sjögren's Syndrome Foundation is launching a major new initiative this fall aimed at reducing the time from onset of symptoms to obtaining a diagnosis.

This October, the SSF will formally announce plans to achieve a new breakthrough goal of "shortening the time from the onset of symptoms to a Sjögren's diagnosis by 50% over the next 5 years." The SSF will be introducing national initiatives and programs to help educate the general public and healthcare professionals. Taylor said, "We hope Venus will consider helping us with this bold initiative, as it will take many to make this goal a reality."

**Arrangements can be made for interviews with local Sjögren's patients, healthcare professionals as well as Steven Taylor, CEO of the Sjögren's Syndrome Foundation.*

Contact Information

  • Contact Information:
    Elizabeth Trocchio or Steven Taylor
    Sjogren's Syndrome Foundation
    Direct Line: 301-530-4420, press 0
    Steven Taylor Cell: 202-550-6019
    Fax: 301-530-4415
    Email: Email Contact
    Website: www.sjogrens.org